Tips for New Parents
Keep in mind that internet research can provide unwanted information. The support group can provide valuable and more accurate information. There is a great community of parents in our group who have children of all ages and can share support and practical information.
- Do not be alarmed if you go through the stages of grief after learning that your child has a DSD. These are normal emotions. Others of us have felt them too, and will understand where you are coming from.
- Remember that the DSD does not define your child. He or she is still the same wonderful child you had before you learned about his or her DSD.
- You will find that your child’s differences can be his or her biggest strengths. You can help your child grow from understanding their differences.
- You will be your child’s biggest advocate. Do your research and always trust your instincts for what is best.
- You may come across people who don’t understand or have any knowledge of what you are going through. Try not to let it get under your skin when people don’t understand. Education is a process, and we are making great strides, but we also have a ways to go.
- Siblings will learn compassion. A sibling likely won’t see any differences and will treat his or her brother or sister with understanding. They will stand up for them, and be there when they need them.
- Remember raising a child with a DSD can be a roller coaster. Emotions can change from day to day. Be good to yourself, and know that your love for your child is the most important thing.
“Grief can be the garden of compassion. If you keep your heart open through everything, your pain can become your greatest ally in your life’s search for love and wisdom.”
“Grief is in two parts. The first is loss. The second is the remaking of life.”
Requested by many parents, we have provided a sample timeline for raising your child positively when he or she has been diagnosed with a difference in sex development. As all children are unique, this timeline is meant to be loosely interpreted to provide a broad picture for parents who want to plan for the future. Conversations should never be forced before a child is ready and some children may have questions sooner than others. With this said, we hope you will find this resource useful. It is broken into two sections based on when the diagnosis is discovered.